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Showing posts with label medication. Show all posts
Showing posts with label medication. Show all posts

Friday, January 20, 2012

Medication Station... To Transfer Or Not. That Is The Question.

There went that idea. At least for another 2 weeks. I wanted to transfer B.'s meds to the store that my husband works at, seeing as Walgreen's dropped my girls and their insurance plan.

Although his IS safe, at least for another year, I don't like the idea of having everyone all over town with their meds. I called the store's pharmacy (Kroger), and sure enough (like back when he WAS with them), they have NONE of the Vyvanse in his strength requirement (top dose of 70 mg).

So, this means filling again with Walgreen's, calling Kroger in 2 weeks to ensure that they place the Vyvanse at that dose on order to come in, in time for us to fill it.

You would think though, being it's one of the MOST WIDELY used drugs for ADHD, in all of the available strengths, that it would ALWAYS be on hand.

I have some thinking to do over the next couple of weeks over this and mull the decision over.

To me, it's just plain common sense to keep in stock, the drugs that you as a Pharmacist knows are of popularity in prescribing. To do otherwise, could cause you to lose customers or (potential) ones. And what if the person was to have ran out before you can get more in? That COULD have deadly consequences.

Sunday, January 15, 2012

On The Merry-Go-Round We Go!..Again.

Well, another appointment has come and gone. Another one minus his Case Manager. THIS time, due to a death in the family.

First of all, we talked about B.'s medications and his eating "habits" of BARELY eating. Especially since again, he has lost weight and is showing the visible signs of it.

So, the doctor and I have decided to cut back some on his Vyvanse by 20 mgs. I will be placing the contents of the entire capsule in to a glass of water, pour out 2 ounces of a 7 oz. glass, then have him drink the other 5 oz. of water to consume 50 mg. of the medicine. I should know in a couple of weeks of doing this if it was the right move.

As for the Seroquel and the Intuniv, they are staying at the same dose of 50 mg. and 2 mg. amounts.

If push comes to shove, I will strongly consider a drug that is used in cancer patients to induce hunger and the wanting to eat. This would hopefully counter the unwillingness to eat and help him gain his weight and proper amount of muscle mass back.

His spinning/walking backwards is apparently a compulsive problem. He does this a lot. Like in Sears and the mall, where he almost knocked some things over and almost hit in to people.

And I found out that the noises and the sniffling (constantly most times) is a couple of tics that he has developed. But I cannot say for certain that it is medication-induced, or brain-induced tics. I think that at the next appointment in April (or was that March?), I will ask about that.

Also, his nose bleeds have been more active.

The highlight to all of this? He hasn't been getting in to AS MUCH trouble in school as of late, with his behavior. Homework and attention? Still not that great. But we are working on it.

Tuesday, November 29, 2011

If You Are A Parent Who is Being *Abused* By Your Kids...

First of all, know you aren't alone with being physically ABUSED... yes, abused, by your child. I have been verbally, emotionally abused, assaulted and my life threatened. All by my child.

It had taken me a long time to accept the fact that I was being abused by my own child. When you are left with marks or scars because of your children's actions, or you have things pulled out on you (like knives, hammers and scissors), and have your very LIFE IT'S SELF *threatened* and/or in jeopardy, that is constituted by law as ABUSE. Even if it's by a minor child.

As for medications (no matter the reason for taking them), if you have stopped them, YES, you have to let the doctor know. Tell them exactly why you did it. They have to know for various reasons. That goes for ANY doctors that have taken charge of taking care of your child medically! They base what is being taken as to if they can use other meds for other reasons as to ensure that there isn't any deadly mixings/cross medicatings.

If your child is getting so out of hand, no matter if just at home, both there and at school, or both of them AND within community settings (restaurants, the store, etc.), that behavior modifications (like a reward system and punishment system) are not working, then it MAY BE time to start thinking about ADD/ADHD (if they have it, too) medications and even Mood Stabilizers (like the Seroquel that B is on).

As for DENIAL that something is truly wrong with our kids, and the fact that they need more help than we can give on our own, we ALL go through it. Especially us moms of children such as ours. But also, you have to look at it from THEIR perspective, too.

Our kids do NOT want to be "bad" kids who are different in that view of them. All in all, they ARE *good* kids, but have brains that are hardwired completely different from their peers and from most other people in general.

Medications for the mentally unstable, for KIDS, has gotten SO many bad "reports". Mainly from those that have NEVER even tried them, and are unwilling to try them for their children as a part of their overall therapy.

True, not every child NEEDS to be medicated. But, most of the time, the ones that NEED it, don't get it, and the ones that DON'T need it, are the ones being "doped up".

In the end, the ONLY ones that can determine for certain that your child needs medications that will help with their mental issues is you, the doctor in charge of your child's care (Psychiatrist) and the child (more so their overall mental state).

Yes, I know that dealing with the agencies and doctors, and therapists CAN be a pain in the butt, in the end, it makes life SO much easier, when what SHOULD HAVE ALREADY been done IS being done.

Easier for them and their day-to-day life, and for US as their parents as well.

Saturday, September 3, 2011

So Far, So Good.. Sort Of

EVERYTHING thus far in school is going well. For the most part. Mornings are a tad bit bumpy here at home. The usual grumpiness, and slight attitude in the voice. He had been non-compliant as of late in regards to getting a move on and ensuring he got everything accomplished, including medicine.

So he went to school without medication for two days last week. That's on him. I have decided to not fight him. It's HIS problem, not mine. Let the school call CPS on me for not drugging my kid.

I'm not fighting him in the morning anymore. I have OTHER kids to attend to and ready for school besides him. And I'm not up to having myself kicked, hit, punched and screamed at abusively anymore.

He is now in Fifth Grade. He needs to act like it. That includes making sure that BEFORE he leaves the house, to take his medicine. Or not being passive-aggressive when I mention the fact he needs to take it.

*Wander with me over at FOR THE LOVE OF BLOGS and join in the fun!*

Friday, August 19, 2011

Changes

On Tuesday, I had to work the Volunteer table at registration. After getting there, I registered the two kids that still will be attending (third is going to Middle School).

The School Nurse was seated in the Library and I was in the cafeteria. But this nurse was NOT the same nurse as from the previous school years. And knowing how busy she is, sometimes (due to health) she needs a sub nurse. Which is what I had thought of as I had seen the lady sitting at the desk.

Come to find out, that this woman IS the School Nurse, and is replacing the one that I have come to value as a friend, and whom my son was EXTREMELY attached to.

As I am sitting in my spot at Registration, another friend comes up, who's child is going to Second grade, and is a Title 1 Reading Aide to say hi. We haven't talked all summer. Well, then SHE to drops a bombshell. She is leaving at the end of the month to work in a Dentist's office, in the same building as her twin sister.

Needless to say, telling B was no picnic. And he wasn't all too happy. But also, where the School Nurse is concerned, I can ALREADY see it coming. That is, unless his Homeroom Teacher (and my oldest's former teacher, and she also taught my husband in third grade, many moons ago) catches on to the tricks first and thwarts his idea.

B can be highly manipulative. And if you don't know his subtle ways, his mannerisms and his voice changes, he can EASILY pull a fast one on you. And it usually happens when he doesn't want to do something, trying to get out of classwork or a test or is in an environment he doesn't care to be in at the moment.

The former school's nurse knew ALL of his tricks. She knew when she needed to call me. She knew when she just needed to shoo him off back to class. She even knew when he HONESTLY did not get his Vyvanse that particular morning, and instead of calling, knowing B NEVER, EVER lies about it, just would give him his pill and then send him on his merry little way.

This year, I can see A LOT of phone calls from the nurse in my future. Then again, knowing the teacher, she will be able to catch him in his little cat/mouse game and thwart his ruse. Because she is just that covered and smothered in Awesome Sauce!.. I at least hope.

Thursday, April 7, 2011

He "Graduated"!! (Of Sorts)

Yesterday, Bryce had another medicine check appointment. But with his NEW (again) Case Manager tagging along.

We went through the usual jargon. How do I feel the levels are, how's he doing at home and at school. And how are the mood swings and yadda yadda.

After everything was hashed out like about the Accommodations problems with the school and about more Behavior Modifications at home and at school, and about upcoming Day Treatment Camp for the Summer, it was time to leave.

After I had picked up all THREE months worth of prescriptions (which to me felt funny), I said "so when are we coming back?". Well, my jaw hit the floor and I went bug eyed when I heard...

"Not for another three MONTHS (unless an emergency arises)".

This will be the longest length EVER for Bryce to be in between appointments. And this is a GOOD thing, seeing as it shows significant progress in his behaviors, struggles with his ODD, ADHD and his Mood Disorder. And it's a good sign that means the levels of dosages for his medications are right where they need to be.

So all in all, it was a pretty good appointment. I honestly could not ask for a better Psychiatrist for my son or other patients under his (the doctor's, of course) care. That man GENUINELY cares about the welfare of his pediatric patients AND their family unit (from siblings to the parents). And he NEVER disses an idea you give or gets huffy for saying "no" to a treatment or dosage change. He knows YOU are the parent and that indeed YOU as the parent, know YOUR child best.

Monday, March 21, 2011

Lesson Learned

You would think that after this already happening LAST Monday, that we would have learned from the mistake..WRONG!

Seems that *I* have now, as of this morning. And thankfully, I was able to squash the problem BEFORE it became a REALLY BIG problem (like last Monday).

Just as we had last Sunday, we took the kids out to breakfast and of course, took Bryce's Vyvanse (ADHD med) with us to give to him after he ate some food. It CAN be taken with or without food. But I like to have him eat before taking the pill.

And now, just like last weekend, it seems that Scott and I left it where it will do no good. Last week, it was in the van's glove compartment. This week? In Scott's jacket pocket.

OOPSIES!!!

But, unlike LAST Monday, this Monday (today) Bryce can get his pill from the School Nurse.

And now, I have thought to myself after realizing the faux pas for the second straight Monday in a row, that from NOW, ON... Bryce will have to just take his Vyvanse without food BEFORE we leave the house to take them anywhere, if it is in the morning hours.

Lesson learned. And hopefully problem avoided in the future.

Monday, March 14, 2011

I Ripped In To The (Substitute) School Nurse.

I honestly didn't mean to. And it was out of anger more than anything, as well as being tired of the "same shit, different day" call.

Yes, it IS true that Bryce did NOT have his Vyvanse this morning. And no, the school has no more of his "back up" pills on stand by. Yes, his not getting his ADHD med this morning was/is MY fault (and his dad's) because we accidentally left it in the glove compartment after taking it with us on an outing yesterday morning.

After speaking both with the (sub) school nurse and with Bryce himself as to what was going on with his "screaming and yelling fit" (which he claims he was NOT acting out), I honestly cannot say at this point who is telling me the truth between him and his teacher.

Why yes I did say that his teacher MAY be *lying*. Because if my son has ANY type of fit (be it mild or otherwise), they call me and AUTOMATICALLY assume that Bryce didn't have his ADHD medicine and will proceed to ask if indeed he did have it or not. In which case, he IS medicated (at home) about 98% of the time.

Also note, that I have told them time and time again, like a damned broken ass record, that it is *NOT* the Vyvanse that controls his mood swings. The Seroquel is used for that issue. And even then, it will not 100% curb them.

Plus add in the fact (and yes it IS indeed listed on his paperwork in the school files, as are ALL of his mental health problems/issues) that he has Sensory Processing issues. And guess what? THAT may very well be the ACTUAL culprit at hand as to why he *supposedly* acted out and had a meltdown.

The Master Gardners Association is at the school this morning and apparently there is A LOT of people in the cafeteria for this, with A LOT of different noises, sights and voices all going at one time. That amounts to WAY TOO MUCH for Bryce to take in all at one time.

No medication will help that! NOTHING. That is a sensory issue with the brain that NO drug will "help". I'm sick of my kids' school thinking that ANY "mental health medication" will be the CURE ALL as to help the teachers and school staff to "handle" these kids. The damn pills are NOT the complete answer, nor is it the ONLY way to "help" these kids meet their FULLEST potential.

WORKING WITH THEM, be it one-on-one or in groups within the classrooms, ALONG WITH the "aid" of the medications is the "cure all" to helping children with various mentally incapacitating disorders/disabilities. Not just to "drug them up" as to SHUT THEM UP.

If I could I would at least pull Bryce out of the Public Schools system and either place him in a Private School setting or even better yet, Home School. But I refuse to Home School for various reasons. One is the patience factor and the point that at some point, I would not have the knowledge to keep going with teaching.

This school has known of ALL of his problems since day one. And legally he DOES meet the requirements for Specialized Services. But their excuses of not complying with the law is that his Academic scores, which meet or even exceed standards for his grade level do not "permit" him to have even simple Requests for Adjustments met. Like isolation for test-taking or even having the help of Day Treatment for times like what *supposedly* happened today.

Now, I am even closer to, if not actually ready to contact the offices of the Disability Rights Advocacy Group in Richmond, Virginia. My son and I have been bullied and passed up long enough.

Monday, February 28, 2011

So much for "cutting back" or "phasing out". (sad and disappointed)

The other day, I'd written a post about CUTTING BACK on my son's Seroquel to see if there was an ability to actually take him all the way off of it.

For the last few nights, I had him taking only 25 mg of the medication, instead of the 50, which he'd been dropped to for the last three weeks, from his top dose of 100 mg.

Sadly, those hopes of completely pulling Bryce off of the Seroquel have been dashed as of this morning.

There have been noticeable changes in his moods and behaviors. And this morning, it became extremely clear that the 25 mg was just not enough to stabilize him.

He has become belligerent, has been spewing "verbal venom" towards me and his sisters, and has gotten physically combative.

These are telltale signs that the 25 mg is just not enough to help him with his ability to have a calm discussion and not want to resort to violent tendencies.

I knew deep down that I shouldn't have gotten my hopes so high and so positive, it's like rainbows were shooting out my ass towards the thought and BELIEF that finally my child could be FREE of even just ONE drug flowing through his system as to help his brain have better control of its self, and Bryce of himself.

But then again, as a mother, how can I *not* at least TRY to be positive in the HOPES that something (for once) goes right for my child in the world of Mental Illness? Is it really too much to ask for some kind of peace for his ever-going mind?

Saturday, February 26, 2011

Cutting Back

Once again, we are scaling back one of B.'s medications. One I'm in high hopes of phasing out altogether. To me, less is more, if at all possible. And I'm hoping in doing so, it helps curb the Tardive Dyskinesia (Tic Disorder that is usually medication-induced with Psychiatric Drug Therapy) as well.

So far, we've gone from 150 of Seroquel (mood controller and sleep aid), down to 100 mg dose. Then over the last several weeks, went down to a 50 mg dose. As of a couple of nights ago, we have now brought the amount down to 25 mg per night.

His other medications (Vyvanse and Intuniv) will remain the same, though. During the Summer Vacation time, we might try to next scale back the Vyvanse to see what happens.

Some people would say that it's "about time" that I stop "doping" my kid up for MY gain and ease of parenting. But I say to them... You don't live our life as a family, or as I as his parent, so YOU have NO room to judge or condemn me or parents like me with kids in the same situations.

True, most of these drugs that treat mental disorders can have some pretty harsh side effects. No doubt about it. But SOMETIMES, you must take the chance of the side effects as to "balance out" what is imbalanced in their minds and give these kids the BEST possible shot at a "normal" life as they can potentially have.

These medications have been known to SAVE the lives of these kids, and save the lives of those around them. Especially in times of being in severe volatile states of emotion and action. I personally in the past have had my son come at me with scissors, knives and hammers. He would tell me in explicit detail of how he was going to kill me.

Then, just like that, the rage was over and he honestly could not remember (most times) what he had said and done. What kind of life is that for a CHILD? This is why he has been on SOME KIND of medication or other since the age of six years old.

So while I have high hopes for completely getting my child off AT LEAST one (if not maybe even two) medications, I will always have it in the back of my mind that there is a very distinct possibility that again, he will HAVE TO go back on them. For his sake, my sake, and the family's sake. And for all of our safety.

Friday, February 4, 2011

If your child is on MEDICATIONS, read this *NOW* and learn from my problem.

I'd initially wrote this post on my main blog page, "The (Not Always) Happy Homemaker Diary", but also wish to share it with you readers here as well. Mind you, this took place yesterday/last night.

If I could, I would have this shooting out of my head..


And have these shooting from my eyes...


Why?

Because, for the now third or fourth time, my local Walgreen's Pharmacist has messed up. It's one thing to miscount the number of pills. It's also one thing to not even fill one of them. Heck, it's even one thing to place your child's medications in the WRONG "filled and ready to go" bins.

But when your "mistake" at reading the prescription goes as far as one, filling it with the WRONG refill number, as well as with the WRONG DOSE, that is when I am DONE.

And that is also when I write to Corporate Office, and to the District Office, and to the Local Store. Yep. Every single level of Walgreen's got a copy of my letter of complaint about this "mix up".

The medications that my child is on are pretty "powerful" and can have some pretty bad side effects if given wrong. The one that was completely dispensed wrong can hurt his Blood Pressure or even his heart.

What SHOULD HAVE BEEN 2 mg. of a dose at 2 refills was ACTUALLY FILLED as 3 mg. dose with 3 refills.

How does someone read a "copy" wrong? When in doubt CALL THE DOCTOR that prescribed the medication, THEN proceed to fill it. It's not rocket science.

Please, my readers, for your safety and for the safety of your family, especially your children, READ LABELS on the medication bottles. Every time. No matter how many times you filled the same medication.

Here is a copy of my letter to all of the branches of Wallgreen's...

To Whom It May Concern,

I'm writing to complain about the (now) third or fourth "accident" in regards to my son's medications being improperly filled.

My nine-year-old is on medications that can have a great impact on his heart and his blood pressure.

His Intuniv was filled COMPLETELY wrong. I was supposed to have 2 mg dose with 2 refills. Instead I received 3 mg dose and 3 refills.

I cannot tell who had filled my son's medications last night, seeing as you do not have your Pharmacists place their names on the prescriptions that they are having to fill. That alone to me, is discouraging. Because I now cannot tell you in fact WHO ACTUALLY filled my child's medications.

At this time I am NOT "taking my business else where", but do know that I will NOT be talking very kindly about your store, and especially not in regards to this branch.

When filling medications, it means that your staff is literally holding their customer's/patient's lives in their hands. Including children.

Thank you,
Melissa C

Tuesday, February 1, 2011

So far, so good..

It's now been a week since we have decided to cut Bryce back on his Seroquel. But only night five last night of doing so, seeing as my pill cutter went missing.

The Seroquel is for helping with mood stabilization and to help him fall as well as stay asleep. But we also strongly believe that this is the medication that is causing the Tardive Dyskinesia also.

So, for the next three weeks, we are only giving him 50 mg. instead of 100..Before then it was 150. If all goes well, then I will again knock it down, but to 25 mg. at night.

The only real problem that I am seeing with the weaning-off process is that Bryce is having a harder time FALLING asleep. But once he is out, it's for the entire night. That alone is a feat in it's own right.

I've also noted though on the other hand a difference between him taking and NOT taking his Vyvanse for the ADHD..When he does have a done, at some point during the day once the medicine has kicked in, his oral movements (tics) become prominent. So, instead of calming the tics, it seems that the Vyvanse is actually "showing off" the tics more. And the doctor said that it may well be the case.

But when I do skip a dose of the Vyvanse, then Bryce's tics, while there, are not nearly as visible. If anything, unless you have a "trained eye" to look for them and take note, then they are to the point of subtlety that they are practically invisible to the naked eye.

I guess all in all, things are looking up. I'm trying to get him off at least one medication. But if need be, later on, depending on any possible violent tendencies or severe mood swings, we may have to place him back on a third medication. It just won't be the Seroquel.

Gotta love the "Medication Merry-Go-Round"!

Tuesday, January 11, 2011

Monday, Monday..

Well, I can say it hasn't happened for a while. But when it does, it can be pretty bad. And yesterday was no exception to the rule.

There are days where Bryce just all out snaps. Like a proverbial twig. And it can happen at ANY moment, over even the most seemingly of mundane of things.

This happened to be over something his older sister had said and the fact he wasn't "first" for the computer. From there, it was all out war.

After he said what he did, which in turn made her cry as she hid in the bathroom (she is my first from a previous marriage), I said he owed her an apology, and that there would be no computer.

Then, finally he DID apologize but EXPECTED to still get computer time. Nope! So this again sent him over the edge. He started stomping, screaming at the top of his lungs, lashing out (literally) at his sisters (even though the youngest did NOTHING to him).

Finally his physically violent temper tantrum came to a head as he screamed bloody murder. That's when I had to use a technique that I haven't used in quite a while.

A bear hug. And believe me, for being so tiny looking, he is hell on wheels to hold when his mental state goes in to high gear like this.

It took me all I had to hold him from behind, as he struggled to break free of me as he squirmed, banged the back of his head at me and was kicking to get free.

As he kept on, I told him I REFUSED to let go until he stopped the screaming, crying, hitting and kicking. I have to be VERY specific of what I want from him in these times of "frustration".

After about three minutes of the hold (at least I think it was only three minutes, but who's counting?) Bryce had calmed down enough to let him go. But before I did, I again had to reiterate that he indeed was NOT getting computer time, and if he went in to a tangent again, that I again would INDEED place him in another bear hug.

Later on in the day, he said (being I was giving him a Vyvanse break for the day, but it does NOT control his mood and volatile side, just the problems with the ADHD like attention and focus) that being he did not have his medicine, that he lost his "control".

This has been an on-going battle/issue with us. Bryce has brought himself to believe that ONLY with his medication, can he "be a good boy", that it's NOT in HIS control to do so, but his medicines' control.

This scares me. A lot. And all of the time. I sound like a broken record at this point, when I tell him that it is NOT the medicines that make him have self control, but BRYCE (as in HIMSELF) that has the self control capability.

But his mind has been self-taught to BELIEVE that without the medicines, he is not in control of his own self, or is responsible for his negative actions, behaviors, thoughts or words.

So, now I'm at a crossroad. Which way do I turn? I highly suspect at this point, he is ADDICTED to at least one of his medicines. He can't seem to "live" without them now. And at nine years old, that is NOT a good sign to me.

We are to see his Psychiatrist on Friday. And I indeed plan on broaching this problem. I'm very tempted to start taking away the medications. At least temporarily. Even if it means committing him to do so, as to keep all involved safe, so that they can see what exact drug of the three is the root of the problem.

While the medications DO work and ARE helping (to a great extent), Bryce HAS TO realize that it is NOT the drugs' job to make him "be a good kid", but himself.

Sometimes, I wonder why him... And this is certainly one of those time.

Monday, January 3, 2011

What Do YOU See In Him??

When you see my son, what do you see? Do you see the happiness he can have most of the time? Do you see that he can be sly at any given moment? Do you see how much he loves his family?


Can you see that my son is Bipolar (classed as Mood Disorder), with OCD, ADHD, Asperger's Tendencies,Manic Depression, an Anxiety Disorder, Tardive Dyskenesia and a Behavior Disorder?

When our children with these 'problems' have an "off" day of lashing out and being 'abnormal', it is OUR normal. We have gotten used to the stares and whispers out in the public eye. Especially when an episode from the Mania he experiences just suddenly pops up during a shopping trip or other outing.

Sure all is fine and good with the world around us....Until *it* happens. Bryce's eyes glaze over in a "haze" and get a more sharp tone. His voice is quiet. His movement almost at a stand still. Then it happens. OUTBURST!

Next thing I know, I am having to take Bryce off to the side to talk him down, maybe even bear hug him from behind. Otherwise he is going to try and knock things over, run off, or hit someone (mainly me or his sisters).

And this is where the world's judges come in. They gawk and stare at the "evil" little boy and the parents that obviously can't "control" their kid. They see that as one of us is dealing with Bryce, the other is trying to maintain calmness with Hayley and Skyler, as to not have them feel upset or embarrassed.

Once everything is said and done, the calm comes as the storm passes. And everything is as it once was before the episode hit. And yes, these can occur at ANY given moment at ANY time of day, in ANY place (even in the home).

What you see as an "outsider" looking in though is NOT what I see. I don't see the "evil" little child that is unruly and needs his "ass whipped more often".

What I personally see as Bryce's mother, and Scott sees in his son as the boy's father is the potential that our son has to become a normal and productive member of society.

Bryce is in mainstream classes at school. And in ADVANCED Math and Reading classes.

He has friends and a 'social life'.

Bryce loves to play games on the computer.

My boy is a major Hot Wheels and Zhu Pets junkie.

He has a wonderful talent for knowing about Astronomy and Science in general.

But Bryce also requires monthly Psychiatric sessions because to help curb MOST of the symptoms of all of his disabilities, he needs medication. And to be sure that the medicines are working properly, there are no adverse affects, and that he is overall doing well, he must see a "shrink".

Okay, yes I said that I "drug" my kid. But, there are SO MANY misconceptions about the medications that are given to Psychiatric patients. Especially those given to children.

My son is not a "zombie'. He is not "foaming at the mouth" or listless. He is functioning at a better rate for his age THANKS TO those drugs. And it helps curb the ideals for him to go and get a hammer or knife and hold it up at me, all the while saying he is GOING TO KILL ME.

Yep, that's actually happened a few times over the years. Why do you think I have to keep the tool room locked? Mainly with the hammer. I don't remember him ever trying it with a knife. But he has raised scissors, ready to strike at me.

What this is all boiling down to is that for parents such as myself, we are tired of "professionals" telling us what we do or do not know. No one knows our children better than us. And when we cry out for help, we EXPECT someone to be there, listen and do RIGHT by our kids. Not pass us off and think that they 'know' our children. When that happens, dangerous or even fatal errors can occur.

Same goes for society as well. When you see a parent dealing with an "evil little brat", don't assume that the kid is just a 'bad seed' and the parent is just not "parenting right". Look at the scene a little closer. Try for a second to put yourself in their shoes. Because their child might be Special too.

Hidden Disabilities get the most "heat" in this nation (USA) and passed off by the general public more than it should be. It's time to stand back and get to know the person before judging them. They are human too and all they ask for, like anyone else is some compassion, understanding, and caring.

Thursday, December 30, 2010

ADHD...

The following is a copy of a post I had done a while back over on my main blog, 'The (Not Always) Happy Homemaker Diary'.

And the title of the post was just what it is here, "ADHD". This I hope will give you a first-hand, real life glimpse in to what my son's life is like on a DAILY basis...


As a mother, it is hard to watch your child struggle. What are ordinary, everyday tasks and expectations to us, is a ball of confusion and frustration for our kids.

Sitting still. Focusing. Being organized. Paying attention to the instructor. Following multiple directions at a rapid pace.

Sounds like a lot, and even a bit confusing to you? I'm sure that it does. But to my son, and to millions of other children in the United States alone, it is a hardship for them every single day to keep up with those tasks while in the classroom, and even at home.

Constantly, I have to remind my hyper, active, not-very-attentive son to complete this task first, so he can move on to the next. Then, after that, I have to remind him to let me check his work against his Agenda, to ensure that he completed the assignments. Then, and only then, may he have his computer or his TV time.

The same goes for his household chores. And the teachers have to stay on top of Bryce as well, being he can fall off of the track pretty quick, and pretty often.

Case in point.. Bryce was found to be sitting in the hall, by his Science and Social Studies Teacher's room. Apparently, he was disrupting the class and "poking at" one girl constantly. After being told to finally move himself to an area where he could be alone, he started to bawl and be belligerent. So, the teacher sent him to the hall.

Then, at snack time, when the Mixed Berries were passed out, he couldn't have any, being that the kitchen never made him a separate bowl without the Blackberries, being he is allergic to them. He went buck wild, pitching a fit, not concentrating on the teacher's explanation, and saying he was being abused because she was "starving" him.

It's not ALL stemming from his ADHD. The lashing out is from another disorder he is inflicted with. But the "poking" of the child, his fidgeting, his lack of concentration, and organization skills, as well as his hyperness, even in his talking to others is a part of the ADHD that he has. Bryce has the more severe form of the disorder.

And yes, he is on medication therapy for it. He takes Vyvanse in the morning, before school. His Intuniv is taken before bedtime. It also serves as a sleep aide, being that his brain stays in "overdrive". The Intuniv relaxes the centers in the brain to control his sleep pattern. And it helps him focus on going to sleep, along with his bedtime routine rituals.

One thing that I have noted the last few years, as the parent of an ADHD child that is medicated, is that most (not all, mind you) teachers think that the medication is the "magic cure-all" for the ADHD while the child is in their classroom. That cannot be further from the truth.

While the medications DO help the child stay focused, attentive, and with less likelihood to blurt out or talk out of turn (or even go way off the topic at hand), the medicines can only control those points to a certain extent.

The remainder of the ADHD child's success relies upon both the child's willingness to gain SELF-control and SELF-discipline, as well as the teacher's willingness to work with the child to achieve those same goals that ADHD students need to be successful students.

This may mean giving the ADHD child a separate desk area, where fellow students will not be a distraction. Or even asking the child if the student is understanding and able to follow the lesson. The teacher can't be "all mouth". They must be about action as well. This means walking around, using hand gestures. Anything to keep the ADHD child engaged in the lesson.

On average, the typical ADHD child can give you no more than fifteen minutes of their attention. For the ones with severe ADHD, you are lucky, and I mean LUCKY, to get ten minutes of their attention, being most severe cases have an attention span of only five minutes.

Too many teachers rely on medication therapy. And anti-medicating advocates talk about us parents? MOST of us parents tried EVERYTHING else under the sun for our children BEFORE going the "pill route".

Our child's first line of defense of course, are the parents. Then, the doctors and therapeutic team. Teachers though, as well as the other school staff round out the team for these kids. We ALL have to work together to help these children with ADHD be successful . Within the classroom setting, as well as out in the community and within the world.

So, remember that while ADHD medications DO help, it's far from being the "cure-all" route of having a successful child. One-on-one working with your child (or student, if that is the case), providing the appropriate tools for success, and helping them to build their SELF-esteem and SELF-control are the REAL keys for having an ADHD child that is well-rounded, adjusted, organized and an overall good student in the classroom and beyond.
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