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Showing posts with label information. Show all posts
Showing posts with label information. Show all posts
Wednesday, February 1, 2012
Wednesday, January 4, 2012
Special Needs Parent Monthly (#1)
Welcome to the kick off of a NEW blog series, where MONTHLY, I will feature a Special Needs Parent. If you are interested in being considered as a featured SN parent in a future posting, please email me at melmom2angels@yahoo.com.
First up is Robin. In her own words, she will tell of herself, her family, and her life with having a disabled child.
basic info....stay at home mom, married 16 years in Feb., I enjoy reading, photograghy and word games.
have 2 sons Derek 11 and Jacob 13..
life as a special needs parent well, I don't sleep much lol. it's a struggle to balance my time between my sons since Jacob needs so much of my time. Jacob was dxed at 2 years, he was a good baby, well a great baby...only cried when he was hungry. Everyone was jealous but in the back of my mind I was worried. He was To good! He didn't regress, he just reached milestones late. He didn't babble, point, or "play" like other kids his age. He started PT at 8 months, Ot and speech at 18 months and early intervention at 2.
He is in the 8th grade and I'm going to start home schooling next because he will be going into high school and I feel like he will benefit more from one on one and I can pay more attention to the areas that of important to Jacob. He LOVES music, football, water, and food. lol which is a challenge because he is on the gf/cf diet.
He's a good dancer. He has severe IBS and when he is in pain he becomes very aggressive. He doesn't know his own strength. He gives the best hugs in the world! He has a lot of sensory issues and likes deep pressure and massage.
He likes to be petted on his arms some times which gets us strange looks in public. lol Doesn't bother me, I'm outspoken if people are rude I let them know about it.
Autism is just part of our family....you learn to adjust your life accordingly. Jacob is non verbal so I am his voice....and I have a big mouth (hehe)!
First up is Robin. In her own words, she will tell of herself, her family, and her life with having a disabled child.
basic info....stay at home mom, married 16 years in Feb., I enjoy reading, photograghy and word games.
have 2 sons Derek 11 and Jacob 13..
life as a special needs parent well, I don't sleep much lol. it's a struggle to balance my time between my sons since Jacob needs so much of my time. Jacob was dxed at 2 years, he was a good baby, well a great baby...only cried when he was hungry. Everyone was jealous but in the back of my mind I was worried. He was To good! He didn't regress, he just reached milestones late. He didn't babble, point, or "play" like other kids his age. He started PT at 8 months, Ot and speech at 18 months and early intervention at 2.
He is in the 8th grade and I'm going to start home schooling next because he will be going into high school and I feel like he will benefit more from one on one and I can pay more attention to the areas that of important to Jacob. He LOVES music, football, water, and food. lol which is a challenge because he is on the gf/cf diet.
He's a good dancer. He has severe IBS and when he is in pain he becomes very aggressive. He doesn't know his own strength. He gives the best hugs in the world! He has a lot of sensory issues and likes deep pressure and massage.
He likes to be petted on his arms some times which gets us strange looks in public. lol Doesn't bother me, I'm outspoken if people are rude I let them know about it.
Autism is just part of our family....you learn to adjust your life accordingly. Jacob is non verbal so I am his voice....and I have a big mouth (hehe)!
Thursday, December 29, 2011
"Invisible No More" (video)
Take a journey with these people and their stories of having hidden/invisible disabilities of varying degrees and ailments.
This is an introduction to those that have been willing to come to the forefront and be the "face" of the Peoples with Invisible Disabilities Community.
Pete Monfre
Lauri Cohen
Andrea Fabry
**DISCLAIMER;**
I own NOTHING. These videos are provided through a YouTube channel for the Invisible No More Organization. And are solely for educational purposes, only.
This is an introduction to those that have been willing to come to the forefront and be the "face" of the Peoples with Invisible Disabilities Community.
Pete Monfre
Lauri Cohen
Andrea Fabry
**DISCLAIMER;**
I own NOTHING. These videos are provided through a YouTube channel for the Invisible No More Organization. And are solely for educational purposes, only.
Tuesday, May 31, 2011
Views Of the Disabled Around the World
The following videos are ones I was able to "find" in regards to how those around the world view and are treated that have various disabilities. And personally, the last video is the most profound.
Kenya...
India...
Botswana...
Philippines...
Liberia...
Kenya...
India...
Botswana...
Philippines...
Liberia...
Saturday, April 30, 2011
ADA and it's historical Significance
ADA, also commonly known as Americans with Disabilities Act, which is now integrating more and more Disabilities over the last couple of decades is an often misunderstood Federal Law. There seem to be more assumptions made, than having facts spoken of.
To get a better view about the ADA, please watch this video that is just a few minutes long.
Sadly, for those individulas who like my son, have what are called "invisible" or "silent" disabilities, getting the ADA to work for them is a chore, to say the least.
The less a person LOOKS disabled, the less likely that the ADA will benefit them. At least this is MY personal experience in regards to trying to have the ADA work in Bryce's favor. I'm still fighting to get simple accommodations at school. Not to mention, he is LEGALLY obliged to receive the 504 Plan. But again, the school is fighting me on that with mundane excuses.
Here's some facts about Invisible/Silent Disabilities.
We as individuals with invisible/silent disabilities and/or those as their caregivers need to get louder than we have been. We need to start shouting from the rooftops. Especially where CHILDREN are concerned. They are the most overlooked individuals.
Why? The simple answer is that because they are KIDS. Kids are stereotyped as being too young and should be able to have things "bounce off them" as if they were rubber balls. Basically, they are too young to be so inactive. Or too young to have "such things" (such as diabetes, which in its self can be QUITE debilitating).
Some children (and adults) don't "look" sick on the outside, but are debilitated on the inside. They may keep medical equipment within their vehicles, out of plan sight (which was the case with me as a small child), in case of an emergent situation.
For twenty years, the Americans with Disabilities Act (ADA) has fought long and hard for those that are VISUALLY (as in seen as they are physically disabled) disabled. Just within the past decade, that I MYSELF know of, have the silently disabled been justified with being included in the fight for Federal Law to also encompass their needs of inclusion and legal fairness to be seen and heard as having REAL disabilities and to be afforded the same rights and Due Processes as their visibly impaired counterparts.
I hope that this post has served it's purpose as being a learning tool, a historical piece, and a means to get more people involved in the movement to bring to light that those with silent/invisible disabilities can and ARE productive individuals within their communities and that they should be able to obtain the same rights and inclusions as those that are blind, deaf, physically and/or mentally challenged.
To get a better view about the ADA, please watch this video that is just a few minutes long.
Sadly, for those individulas who like my son, have what are called "invisible" or "silent" disabilities, getting the ADA to work for them is a chore, to say the least.
The less a person LOOKS disabled, the less likely that the ADA will benefit them. At least this is MY personal experience in regards to trying to have the ADA work in Bryce's favor. I'm still fighting to get simple accommodations at school. Not to mention, he is LEGALLY obliged to receive the 504 Plan. But again, the school is fighting me on that with mundane excuses.
Here's some facts about Invisible/Silent Disabilities.
We as individuals with invisible/silent disabilities and/or those as their caregivers need to get louder than we have been. We need to start shouting from the rooftops. Especially where CHILDREN are concerned. They are the most overlooked individuals.
Why? The simple answer is that because they are KIDS. Kids are stereotyped as being too young and should be able to have things "bounce off them" as if they were rubber balls. Basically, they are too young to be so inactive. Or too young to have "such things" (such as diabetes, which in its self can be QUITE debilitating).
Some children (and adults) don't "look" sick on the outside, but are debilitated on the inside. They may keep medical equipment within their vehicles, out of plan sight (which was the case with me as a small child), in case of an emergent situation.
For twenty years, the Americans with Disabilities Act (ADA) has fought long and hard for those that are VISUALLY (as in seen as they are physically disabled) disabled. Just within the past decade, that I MYSELF know of, have the silently disabled been justified with being included in the fight for Federal Law to also encompass their needs of inclusion and legal fairness to be seen and heard as having REAL disabilities and to be afforded the same rights and Due Processes as their visibly impaired counterparts.
I hope that this post has served it's purpose as being a learning tool, a historical piece, and a means to get more people involved in the movement to bring to light that those with silent/invisible disabilities can and ARE productive individuals within their communities and that they should be able to obtain the same rights and inclusions as those that are blind, deaf, physically and/or mentally challenged.
Monday, April 25, 2011
SSI/SSDI...What Are They?
My son gets SSI for children. He basically draws off of myself and/or my husband's collected Social Security benefits that I did at one time pay in to, and that my husband, through his employer, IS CURRENTLY paying in to.
Most people have a misconceived notion that my child draws off of ALL tax payers. Not true. It's off of myself and/or my husband, only.
Please watch the two following videos, especially the second one in regards to information pertaining to SSI/SSDI and what Mental Disorders/Illnesses MAY qualify to collect, and it's application processes.
*DISCLAIMER*... I do not endorse either of these gentlemen. I have not ever made contact with either, nor am I receiving any monetary gain for featuring these men and their companies.
Most people have a misconceived notion that my child draws off of ALL tax payers. Not true. It's off of myself and/or my husband, only.
Please watch the two following videos, especially the second one in regards to information pertaining to SSI/SSDI and what Mental Disorders/Illnesses MAY qualify to collect, and it's application processes.
*DISCLAIMER*... I do not endorse either of these gentlemen. I have not ever made contact with either, nor am I receiving any monetary gain for featuring these men and their companies.
Monday, April 11, 2011
Need A Place Other Than THIS Blog to share and talk?
Then you have a couple of options! One of them is brand-spanking new. The other is well, not so "new", but may be "new" to YOU. (=
First of all, 'The "Mental"-ist Mom' has it's very own "Like" page over on FaceBook.
There you will find direct links to new posts. Yo can also post to the page's wall with discussions, photos, links to other sites or to articles that you wish to share. Me casa, su casa is my motto!
Now for the BRAND NEW spot you can also find me at, and this blog's postings and other neat things...
The Blog Frog Community for 'The "Mental"-ist Mom' blog!
There's already some discussion topics up for you to join in with us. And please FEEL FREE to start discussions of your own...There's also room for GROUPS to be formed. If YOU wish to start a group, please contact me via message on TBF Community and I will make you an Admin of the site SPECIFICALLY to run YOUR group (only).
Have a wonderful Monday, everyone! And I hope that you will indeed "hop" on over to these pages and that we can converse soon. I LOVE interacting with my readers.
First of all, 'The "Mental"-ist Mom' has it's very own "Like" page over on FaceBook.
There you will find direct links to new posts. Yo can also post to the page's wall with discussions, photos, links to other sites or to articles that you wish to share. Me casa, su casa is my motto!
Now for the BRAND NEW spot you can also find me at, and this blog's postings and other neat things...
The Blog Frog Community for 'The "Mental"-ist Mom' blog!
There's already some discussion topics up for you to join in with us. And please FEEL FREE to start discussions of your own...There's also room for GROUPS to be formed. If YOU wish to start a group, please contact me via message on TBF Community and I will make you an Admin of the site SPECIFICALLY to run YOUR group (only).
Have a wonderful Monday, everyone! And I hope that you will indeed "hop" on over to these pages and that we can converse soon. I LOVE interacting with my readers.
Friday, February 4, 2011
If your child is on MEDICATIONS, read this *NOW* and learn from my problem.
I'd initially wrote this post on my main blog page, "The (Not Always) Happy Homemaker Diary", but also wish to share it with you readers here as well. Mind you, this took place yesterday/last night.
If I could, I would have this shooting out of my head..
And have these shooting from my eyes...
Why?
Because, for the now third or fourth time, my local Walgreen's Pharmacist has messed up. It's one thing to miscount the number of pills. It's also one thing to not even fill one of them. Heck, it's even one thing to place your child's medications in the WRONG "filled and ready to go" bins.
But when your "mistake" at reading the prescription goes as far as one, filling it with the WRONG refill number, as well as with the WRONG DOSE, that is when I am DONE.
And that is also when I write to Corporate Office, and to the District Office, and to the Local Store. Yep. Every single level of Walgreen's got a copy of my letter of complaint about this "mix up".
The medications that my child is on are pretty "powerful" and can have some pretty bad side effects if given wrong. The one that was completely dispensed wrong can hurt his Blood Pressure or even his heart.
What SHOULD HAVE BEEN 2 mg. of a dose at 2 refills was ACTUALLY FILLED as 3 mg. dose with 3 refills.
How does someone read a "copy" wrong? When in doubt CALL THE DOCTOR that prescribed the medication, THEN proceed to fill it. It's not rocket science.
Please, my readers, for your safety and for the safety of your family, especially your children, READ LABELS on the medication bottles. Every time. No matter how many times you filled the same medication.
Here is a copy of my letter to all of the branches of Wallgreen's...
To Whom It May Concern,
I'm writing to complain about the (now) third or fourth "accident" in regards to my son's medications being improperly filled.
My nine-year-old is on medications that can have a great impact on his heart and his blood pressure.
His Intuniv was filled COMPLETELY wrong. I was supposed to have 2 mg dose with 2 refills. Instead I received 3 mg dose and 3 refills.
I cannot tell who had filled my son's medications last night, seeing as you do not have your Pharmacists place their names on the prescriptions that they are having to fill. That alone to me, is discouraging. Because I now cannot tell you in fact WHO ACTUALLY filled my child's medications.
At this time I am NOT "taking my business else where", but do know that I will NOT be talking very kindly about your store, and especially not in regards to this branch.
When filling medications, it means that your staff is literally holding their customer's/patient's lives in their hands. Including children.
Thank you,
Melissa C
If I could, I would have this shooting out of my head..
And have these shooting from my eyes...
Why?
Because, for the now third or fourth time, my local Walgreen's Pharmacist has messed up. It's one thing to miscount the number of pills. It's also one thing to not even fill one of them. Heck, it's even one thing to place your child's medications in the WRONG "filled and ready to go" bins.
But when your "mistake" at reading the prescription goes as far as one, filling it with the WRONG refill number, as well as with the WRONG DOSE, that is when I am DONE.
And that is also when I write to Corporate Office, and to the District Office, and to the Local Store. Yep. Every single level of Walgreen's got a copy of my letter of complaint about this "mix up".
The medications that my child is on are pretty "powerful" and can have some pretty bad side effects if given wrong. The one that was completely dispensed wrong can hurt his Blood Pressure or even his heart.
What SHOULD HAVE BEEN 2 mg. of a dose at 2 refills was ACTUALLY FILLED as 3 mg. dose with 3 refills.
How does someone read a "copy" wrong? When in doubt CALL THE DOCTOR that prescribed the medication, THEN proceed to fill it. It's not rocket science.
Please, my readers, for your safety and for the safety of your family, especially your children, READ LABELS on the medication bottles. Every time. No matter how many times you filled the same medication.
Here is a copy of my letter to all of the branches of Wallgreen's...
To Whom It May Concern,
I'm writing to complain about the (now) third or fourth "accident" in regards to my son's medications being improperly filled.
My nine-year-old is on medications that can have a great impact on his heart and his blood pressure.
His Intuniv was filled COMPLETELY wrong. I was supposed to have 2 mg dose with 2 refills. Instead I received 3 mg dose and 3 refills.
I cannot tell who had filled my son's medications last night, seeing as you do not have your Pharmacists place their names on the prescriptions that they are having to fill. That alone to me, is discouraging. Because I now cannot tell you in fact WHO ACTUALLY filled my child's medications.
At this time I am NOT "taking my business else where", but do know that I will NOT be talking very kindly about your store, and especially not in regards to this branch.
When filling medications, it means that your staff is literally holding their customer's/patient's lives in their hands. Including children.
Thank you,
Melissa C
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