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Showing posts with label pissed off. Show all posts
Showing posts with label pissed off. Show all posts

Thursday, December 1, 2011

SEVERELY Mentally Handicapped Kids *Tourtured* By Own Mother

I'll just let you watch the video and let it speak for its self... Because I honestly have NO words.

Posted on YouTube on Nov. 11th, 2011 from a local news channel in St. Petersberg.

GRAPHIC DETAILS!

Friday, August 5, 2011

Case Manager Mismanagement

Yesterday, I had to drag my family out in to the unseasonably hot Summer heat to take B to his yearly check up. All went well, though he cried like Hoover Dam when he got two shots in his bony arm.

Then, it was off to brunch at a Biscutville in the area where the doctor is (next town over from us)being that only one of us five ate any breakfast. No, it wasn't the boy, the mom, the dad or even the big sister. You got it. Littlest one was smart enough to eat BEFORE we were to leave.

Then, it was off to Child and Family Services, where B has his Case Management and his Psychiatric appointments. I stopped in to drop off the Medication Dispersal sheet for school, being he has to have backup of Vyvanse there, just in case. And while there, I was able to meet up with the CM to sign the needed papers for the next six months to a year (depending on the information).

At one point, she got to talking to B about his not eating and how even skinnier he looks from the last time she had seen him (about a month ago).

This is where the trouble began. And where my "Mama Bear" came out, claws ready.

At one point of the "eating" conversation, I"stepped in" and noted that now, I am seeing troubling signs of his (non)eating habits starting to spill over to his LITTLE sister. She is EXTREMELY picky, just like him. She "bird pecks" most of her meals, just like him. And she is not willing to try foods, just like him.

Needless to say, I got the "you shouldn't compare B to S, and you need to concentrate on B. And I am ONLY going to concentrate on B"...Excuse me? PART OF YOUR JOB is to oversee the needs of the FAMILY, not JUST the client him/herself. And I have LEGITIMATE concerns that ultimately affect my ENTIRE family.

Mind you, I was signing papers that she was LATE getting to the proper areas, but was "hunting" me down to get them signed. Some were back from APRIL. The others were CURRENT paperwork. I even back-dated the older ones (to save her from getting in to trouble).

If what she said about one of my kids being more important over the other was said BEFORE I started placing my "John Hancock", I would have dated the OLD forms for YESTERDAYS date, just to be a bitch.

And I have seriously considered contacting B's former CM who is now HER boss and ask if what she said was correct and/or acceptable. I addressed concerns for BOTH "her client" and for HIS little sister. It wasn't until I said anything, that HE finally got it and is now seeing how HIS habits are affecting others in the home.

Monday, March 14, 2011

I Ripped In To The (Substitute) School Nurse.

I honestly didn't mean to. And it was out of anger more than anything, as well as being tired of the "same shit, different day" call.

Yes, it IS true that Bryce did NOT have his Vyvanse this morning. And no, the school has no more of his "back up" pills on stand by. Yes, his not getting his ADHD med this morning was/is MY fault (and his dad's) because we accidentally left it in the glove compartment after taking it with us on an outing yesterday morning.

After speaking both with the (sub) school nurse and with Bryce himself as to what was going on with his "screaming and yelling fit" (which he claims he was NOT acting out), I honestly cannot say at this point who is telling me the truth between him and his teacher.

Why yes I did say that his teacher MAY be *lying*. Because if my son has ANY type of fit (be it mild or otherwise), they call me and AUTOMATICALLY assume that Bryce didn't have his ADHD medicine and will proceed to ask if indeed he did have it or not. In which case, he IS medicated (at home) about 98% of the time.

Also note, that I have told them time and time again, like a damned broken ass record, that it is *NOT* the Vyvanse that controls his mood swings. The Seroquel is used for that issue. And even then, it will not 100% curb them.

Plus add in the fact (and yes it IS indeed listed on his paperwork in the school files, as are ALL of his mental health problems/issues) that he has Sensory Processing issues. And guess what? THAT may very well be the ACTUAL culprit at hand as to why he *supposedly* acted out and had a meltdown.

The Master Gardners Association is at the school this morning and apparently there is A LOT of people in the cafeteria for this, with A LOT of different noises, sights and voices all going at one time. That amounts to WAY TOO MUCH for Bryce to take in all at one time.

No medication will help that! NOTHING. That is a sensory issue with the brain that NO drug will "help". I'm sick of my kids' school thinking that ANY "mental health medication" will be the CURE ALL as to help the teachers and school staff to "handle" these kids. The damn pills are NOT the complete answer, nor is it the ONLY way to "help" these kids meet their FULLEST potential.

WORKING WITH THEM, be it one-on-one or in groups within the classrooms, ALONG WITH the "aid" of the medications is the "cure all" to helping children with various mentally incapacitating disorders/disabilities. Not just to "drug them up" as to SHUT THEM UP.

If I could I would at least pull Bryce out of the Public Schools system and either place him in a Private School setting or even better yet, Home School. But I refuse to Home School for various reasons. One is the patience factor and the point that at some point, I would not have the knowledge to keep going with teaching.

This school has known of ALL of his problems since day one. And legally he DOES meet the requirements for Specialized Services. But their excuses of not complying with the law is that his Academic scores, which meet or even exceed standards for his grade level do not "permit" him to have even simple Requests for Adjustments met. Like isolation for test-taking or even having the help of Day Treatment for times like what *supposedly* happened today.

Now, I am even closer to, if not actually ready to contact the offices of the Disability Rights Advocacy Group in Richmond, Virginia. My son and I have been bullied and passed up long enough.

Friday, February 4, 2011

If your child is on MEDICATIONS, read this *NOW* and learn from my problem.

I'd initially wrote this post on my main blog page, "The (Not Always) Happy Homemaker Diary", but also wish to share it with you readers here as well. Mind you, this took place yesterday/last night.

If I could, I would have this shooting out of my head..


And have these shooting from my eyes...


Why?

Because, for the now third or fourth time, my local Walgreen's Pharmacist has messed up. It's one thing to miscount the number of pills. It's also one thing to not even fill one of them. Heck, it's even one thing to place your child's medications in the WRONG "filled and ready to go" bins.

But when your "mistake" at reading the prescription goes as far as one, filling it with the WRONG refill number, as well as with the WRONG DOSE, that is when I am DONE.

And that is also when I write to Corporate Office, and to the District Office, and to the Local Store. Yep. Every single level of Walgreen's got a copy of my letter of complaint about this "mix up".

The medications that my child is on are pretty "powerful" and can have some pretty bad side effects if given wrong. The one that was completely dispensed wrong can hurt his Blood Pressure or even his heart.

What SHOULD HAVE BEEN 2 mg. of a dose at 2 refills was ACTUALLY FILLED as 3 mg. dose with 3 refills.

How does someone read a "copy" wrong? When in doubt CALL THE DOCTOR that prescribed the medication, THEN proceed to fill it. It's not rocket science.

Please, my readers, for your safety and for the safety of your family, especially your children, READ LABELS on the medication bottles. Every time. No matter how many times you filled the same medication.

Here is a copy of my letter to all of the branches of Wallgreen's...

To Whom It May Concern,

I'm writing to complain about the (now) third or fourth "accident" in regards to my son's medications being improperly filled.

My nine-year-old is on medications that can have a great impact on his heart and his blood pressure.

His Intuniv was filled COMPLETELY wrong. I was supposed to have 2 mg dose with 2 refills. Instead I received 3 mg dose and 3 refills.

I cannot tell who had filled my son's medications last night, seeing as you do not have your Pharmacists place their names on the prescriptions that they are having to fill. That alone to me, is discouraging. Because I now cannot tell you in fact WHO ACTUALLY filled my child's medications.

At this time I am NOT "taking my business else where", but do know that I will NOT be talking very kindly about your store, and especially not in regards to this branch.

When filling medications, it means that your staff is literally holding their customer's/patient's lives in their hands. Including children.

Thank you,
Melissa C

Wednesday, January 12, 2011

Things WILL be changing around here!

When is enough truly enough? It's when you constantly hear your son ask you why his sisters get to go on overnight trips with extended family members, but he is NEVER invited.

With the exception of one.

So, as of last night, I told my husband that after this upcoming weekend getaway that Hayley will have with my oldest niece, there will be NO MORE over-nighters for ANY of the three kids. Except for with the one certain family member.

No one knows of this yet, seeing as the ONLY one to know of my decision is my husband, who did not dare fight me on it, seeing as he has been heart sick over the "treatment" (or lack there of) of our son.

Oh I am 100% positive that they LOVE my child. But love is NOT just about the three words, 'I LOVE YOU'. It's also shown and even spoken of through ACTION.

They can all tell my kid that they love him until they are blue in the face and he gets sick to death of hearing it. What he is BEGGING for, yearning for is for it to be SHOWN to him.

He wants to have the same opportunity as his sisters get. And that is to have fun times with his cousins, aunts and uncles.

But of course that means having to take responsibility for his care. This means having constant contact with him for an entire night and at least part of an entire day.

And without even telling me, they are in some way SCARED of him and what he is capable of. When he has an episode, anything can happen.

Well damn! I deal with that shit EVERY single day. And guess what? I STILL manage to have FUN with him. I still treat him as if he is just as "normal" as any other person.

It'd be REALLY nice to have a damned break. I don't get that. Rarely enough do I with the girls. But NEVER (but once in a blue moon with the one family member) where Bryce is concerned.

So this is why after this weekend, NONE of my kids will be allowed to have sleepovers at other family members' homes. I see it like this.. If you can't take ALL THREE (either individually or together) from time to time, then you should NOT get ANY of my children.

And also, I have decided that just because I am a Stay-Home Mom, I am NO LONGER watching ANY of the kids in the family, except for the one who's willing to take my son from time to time.

I'm tired of being a damn door mat. And I'm tired of being used and having one of my kids pushed out because he is "different".

When it's a friend doing this shit, it's one thing. Still hurtful, but not as heart breaking. When it's family, that's a whole other ball game.

Tuesday, January 4, 2011

Readers/Followers... (Yeah, I'm pretty upset!)

Okay, I think I need to nip this in the bud. Right here. Right now.

I do NOT do the "I followed you/follow me back" crap. That is NOT the way I roll. If I decide to click on your profile and check out your blog, I will. But without ANY pushing.

This blog is not my way to get a bunch of "followers" that are only doing the above 'game'. I want REAL readers/followers of this blog.

Why? Because the subject matter of THIS blog is REAL.

It is NOT a game.

Mental illnesses and disorders are not things that are to be triffled and played with. Their causes are real. Their affects are real.

And PERSONALLY, I feel that those of you that do the copy/paste shit with no intention of reading the posts, only out to get more "readers" are not only disrespecting me, but you are also disrespecting my son and our family.

So be warned....

If you are going to "follow" then do so. And READ what the realities REALLY are for my child, us as a family, and MILLIONS of other kids and their families that are dealing with mental illness.
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