So Far, So Good.. Sort Of

EVERYTHING thus far in school is going well. For the most part. Mornings are a tad bit bumpy here at home. The usual grumpiness, and slight attitude in the voice. He had been non-compliant as of late in regards to getting a move on and ensuring he got everything accomplished, including medicine.

So he went to school without medication for two days last week. That's on him. I have decided to not fight him. It's HIS problem, not mine. Let the school call CPS on me for not drugging my kid.

I'm not fighting him in the morning anymore. I have OTHER kids to attend to and ready for school besides him. And I'm not up to having myself kicked, hit, punched and screamed at abusively anymore.

He is now in Fifth Grade. He needs to act like it. That includes making sure that BEFORE he leaves the house, to take his medicine. Or not being passive-aggressive when I mention the fact he needs to take it.

*Wander with me over at FOR THE LOVE OF BLOGS and join in the fun!*

Changes

On Tuesday, I had to work the Volunteer table at registration. After getting there, I registered the two kids that still will be attending (third is going to Middle School).

The School Nurse was seated in the Library and I was in the cafeteria. But this nurse was NOT the same nurse as from the previous school years. And knowing how busy she is, sometimes (due to health) she needs a sub nurse. Which is what I had thought of as I had seen the lady sitting at the desk.

Come to find out, that this woman IS the School Nurse, and is replacing the one that I have come to value as a friend, and whom my son was EXTREMELY attached to.

As I am sitting in my spot at Registration, another friend comes up, who's child is going to Second grade, and is a Title 1 Reading Aide to say hi. We haven't talked all summer. Well, then SHE to drops a bombshell. She is leaving at the end of the month to work in a Dentist's office, in the same building as her twin sister.

Needless to say, telling B was no picnic. And he wasn't all too happy. But also, where the School Nurse is concerned, I can ALREADY see it coming. That is, unless his Homeroom Teacher (and my oldest's former teacher, and she also taught my husband in third grade, many moons ago) catches on to the tricks first and thwarts his idea.

B can be highly manipulative. And if you don't know his subtle ways, his mannerisms and his voice changes, he can EASILY pull a fast one on you. And it usually happens when he doesn't want to do something, trying to get out of classwork or a test or is in an environment he doesn't care to be in at the moment.

The former school's nurse knew ALL of his tricks. She knew when she needed to call me. She knew when she just needed to shoo him off back to class. She even knew when he HONESTLY did not get his Vyvanse that particular morning, and instead of calling, knowing B NEVER, EVER lies about it, just would give him his pill and then send him on his merry little way.

This year, I can see A LOT of phone calls from the nurse in my future. Then again, knowing the teacher, she will be able to catch him in his little cat/mouse game and thwart his ruse. Because she is just that covered and smothered in Awesome Sauce!.. I at least hope.

Case Manager Mismanagement

Yesterday, I had to drag my family out in to the unseasonably hot Summer heat to take B to his yearly check up. All went well, though he cried like Hoover Dam when he got two shots in his bony arm.

Then, it was off to brunch at a Biscutville in the area where the doctor is (next town over from us)being that only one of us five ate any breakfast. No, it wasn't the boy, the mom, the dad or even the big sister. You got it. Littlest one was smart enough to eat BEFORE we were to leave.

Then, it was off to Child and Family Services, where B has his Case Management and his Psychiatric appointments. I stopped in to drop off the Medication Dispersal sheet for school, being he has to have backup of Vyvanse there, just in case. And while there, I was able to meet up with the CM to sign the needed papers for the next six months to a year (depending on the information).

At one point, she got to talking to B about his not eating and how even skinnier he looks from the last time she had seen him (about a month ago).

This is where the trouble began. And where my "Mama Bear" came out, claws ready.

At one point of the "eating" conversation, I"stepped in" and noted that now, I am seeing troubling signs of his (non)eating habits starting to spill over to his LITTLE sister. She is EXTREMELY picky, just like him. She "bird pecks" most of her meals, just like him. And she is not willing to try foods, just like him.

Needless to say, I got the "you shouldn't compare B to S, and you need to concentrate on B. And I am ONLY going to concentrate on B"...Excuse me? PART OF YOUR JOB is to oversee the needs of the FAMILY, not JUST the client him/herself. And I have LEGITIMATE concerns that ultimately affect my ENTIRE family.

Mind you, I was signing papers that she was LATE getting to the proper areas, but was "hunting" me down to get them signed. Some were back from APRIL. The others were CURRENT paperwork. I even back-dated the older ones (to save her from getting in to trouble).

If what she said about one of my kids being more important over the other was said BEFORE I started placing my "John Hancock", I would have dated the OLD forms for YESTERDAYS date, just to be a bitch.

And I have seriously considered contacting B's former CM who is now HER boss and ask if what she said was correct and/or acceptable. I addressed concerns for BOTH "her client" and for HIS little sister. It wasn't until I said anything, that HE finally got it and is now seeing how HIS habits are affecting others in the home.

Yes, Celebs To Can Have Mental Illnesses

Everyone is human that walks on two legs and speaks a language. This includes high profile politicos, those in the music business, athletes, and entertainers.

Entertainers such as Catherine Zeta-Jones included. She has Bipolar II Disorder.

Differences in Bipolar I and Bipolar II are...

Bipolar Type 1

The type 1 bipolar disorder is characterized based on the occurrence of at least one manic episode, with or without the occurrence of a major depressive episode. The mania in this diagnosis is full-blown. This abnormality would usually last for a week at the very least. But there are cases that the bipolar patient is required to be confined for more than a week if hospitalized.

Symptoms of this type include the following:

* Self-esteem is high and the patient possesses a great deal of confidence.

* Ambitious attitude is apparent in this state.

* There is the feeling of sleeplessness.

* The patient tends to talk excessively.

* The patient has a tendency to think more than the usual.

The danger of this type is that the patient may hallucinate, losing his grasp of reality. In some cases of bipolar type 1, the patient is diagnosed as psychotic. In some books about bipolar disorder, bipolar type 1 is also called the "raging" bipolar.

Bipolar Type 2

The bipolar type 2 disorder is characterized by the occurrence of at least one hypomania episode and one major depressive state. Sometimes, this type may even have occurrences of more depressive episodes.

In some cases, hypomania actually enables the individual to excel in their fields of expertise. The state of hypomania can be apparent in people that are top achievers in the work environment and at parties. The symptoms in hypomania are mostly positive and may run for about four days before it subsides.

Though its manifestation is obvious and can be observed clearly by other people, the "swinging" bipolar (as it is aptly called) doesn't cause any disruption in normal functional settings. It doesn't cause any hospitalization to a hyperactive person and doesn't have psychotic tendencies.

Article Source: Ezine Articles


And yes, as such is the case with Catherine Zeta-Jones, stress can play a factor in the Bipolar patient's stability and ability to control their disorder, and function at more normal levels.

To read the full article about CZJ and her treatment, CLICK HERE.

Children Like Mine Grieve Differently

My son isn't completely your "average, ordinary" kid. Sure, he does what most kids do in regards to playing outside, playing video games, watching goofy TV shows and other "normal" kid things.

But much of that is on a lower age level then those of his peers. Though he is finally out of the stage of still wanting to watch Playhouse Disney and the Srpout Channel (which he did up until the age of 8 years old).

Three years ago, two of my kids (Bryce and his older sister) got their first "taste" of real life, and the fact that we don't live forever and that those that we love will die one day.

Back then, I only took Hayley (the oldest) with us to the Funeral services. It was her first time seeing a person who passed away laying in state. For the most part, under the circumstances, she did quite well.

Now, tomorrow she will witness the burial of her Great-Grandfather, whom she was quite fond of. And so was Bryce. He will be now attending his first Funeral service.

With him, we have been preparing him for WEEKS of the impending death of their "Big Papa". Yes, there were lots of questions. My husband and I answered best as we could.

Sunday night is when Scott's grandfather passed. And while the two older ones were shook up and in a state of denile and shock, they took it better than I thought that they would.

The next morning though, is when all of that changed. And overnight, my son had changed. I guess from all the pent up grief from the night before.

While most children his age would just fall apart, crying and either go off to be alone or wish to be held as they began their grieving process, Bryce was "showing himself" in a way I had not seen in a very long time.

You see, one of his problems is a processing disorder. His brain doesn't take emotional overload very well, or sensory messages that are too great or too many to deal with at once. And this is apparently what had happened.

And the end result was a nine-year-old boy throwing, hitting, screaming, yelling and crying all at once. It was a classic Manic Episode in full form. Only this time unlike most others, I knew where this one was stemming from. Normally they just "hit" without real warning or cause. While indeed, it was without warning, I was able to figure out the cause pretty fast.

I'd chalked it up to the grief of what we told him the night before just all spilling out at once. But then, it happened on the next morning as well. While I still figured it was the grieving coming out, seeing as they had been too busy otherwise to "really think about it all", I'd had enough. I too have been at the end of my emotional rope.

After day two of this volatile display of emotion, I flat out told Bryce that if this is how he was going to be, then there was NO way he was going to be allowed to attend the Funeral. I said that this was NOT the way that we display our hurt. Especially not there.

And like I flipped a switch within him somehow, he stopped. Yes, he was still crying, but it was more of an "age appropriate" crying and being upset.

Kids with processing and sensory disorders deal with things so much differently than neurotypical children. What may not mean the end of the world to us, and seem quite trivial is equivalent to the world crashing down around them and that the sky is falling.

So when something such as the death of a close friend or family member occurs, their already shaky emotional and mental stability can indeed worsen. And a myriad of emotion can spill out all at once, and along with it come some not-so desired behaviors.

**Also as a side note, I would like to thank our cousin Tara. She was the ONLY one out of all the family that know of Bryce's problems to ask how Bryce was doing and handling HIS loss.

Now I can see indeed why I picked her as the God Parent of my kids. She truly is concerned for their welfare and never forgets to ask about them. Especially my son. Thank you Tara!**

If your child is on MEDICATIONS, read this *NOW* and learn from my problem.

I'd initially wrote this post on my main blog page, "The (Not Always) Happy Homemaker Diary", but also wish to share it with you readers here as well. Mind you, this took place yesterday/last night.

If I could, I would have this shooting out of my head..

And have these shooting from my eyes...

Why?

Because, for the now third or fourth time, my local Walgreen's Pharmacist has messed up. It's one thing to miscount the number of pills. It's also one thing to not even fill one of them. Heck, it's even one thing to place your child's medications in the WRONG "filled and ready to go" bins.

But when your "mistake" at reading the prescription goes as far as one, filling it with the WRONG refill number, as well as with the WRONG DOSE, that is when I am DONE.

And that is also when I write to Corporate Office, and to the District Office, and to the Local Store. Yep. Every single level of Walgreen's got a copy of my letter of complaint about this "mix up".

The medications that my child is on are pretty "powerful" and can have some pretty bad side effects if given wrong. The one that was completely dispensed wrong can hurt his Blood Pressure or even his heart.

What SHOULD HAVE BEEN 2 mg. of a dose at 2 refills was ACTUALLY FILLED as 3 mg. dose with 3 refills.

How does someone read a "copy" wrong? When in doubt CALL THE DOCTOR that prescribed the medication, THEN proceed to fill it. It's not rocket science.

Please, my readers, for your safety and for the safety of your family, especially your children, READ LABELS on the medication bottles. Every time. No matter how many times you filled the same medication.

Here is a copy of my letter to all of the branches of Wallgreen's...

To Whom It May Concern,

I'm writing to complain about the (now) third or fourth "accident" in regards to my son's medications being improperly filled.

My nine-year-old is on medications that can have a great impact on his heart and his blood pressure.

His Intuniv was filled COMPLETELY wrong. I was supposed to have 2 mg dose with 2 refills. Instead I received 3 mg dose and 3 refills.

I cannot tell who had filled my son's medications last night, seeing as you do not have your Pharmacists place their names on the prescriptions that they are having to fill. That alone to me, is discouraging. Because I now cannot tell you in fact WHO ACTUALLY filled my child's medications.

At this time I am NOT "taking my business else where", but do know that I will NOT be talking very kindly about your store, and especially not in regards to this branch.

When filling medications, it means that your staff is literally holding their customer's/patient's lives in their hands. Including children.

Thank you,
Melissa C

Monday, Monday..

Well, I can say it hasn't happened for a while. But when it does, it can be pretty bad. And yesterday was no exception to the rule.

There are days where Bryce just all out snaps. Like a proverbial twig. And it can happen at ANY moment, over even the most seemingly of mundane of things.

This happened to be over something his older sister had said and the fact he wasn't "first" for the computer. From there, it was all out war.

After he said what he did, which in turn made her cry as she hid in the bathroom (she is my first from a previous marriage), I said he owed her an apology, and that there would be no computer.

Then, finally he DID apologize but EXPECTED to still get computer time. Nope! So this again sent him over the edge. He started stomping, screaming at the top of his lungs, lashing out (literally) at his sisters (even though the youngest did NOTHING to him).

Finally his physically violent temper tantrum came to a head as he screamed bloody murder. That's when I had to use a technique that I haven't used in quite a while.

A bear hug. And believe me, for being so tiny looking, he is hell on wheels to hold when his mental state goes in to high gear like this.

It took me all I had to hold him from behind, as he struggled to break free of me as he squirmed, banged the back of his head at me and was kicking to get free.

As he kept on, I told him I REFUSED to let go until he stopped the screaming, crying, hitting and kicking. I have to be VERY specific of what I want from him in these times of "frustration".

After about three minutes of the hold (at least I think it was only three minutes, but who's counting?) Bryce had calmed down enough to let him go. But before I did, I again had to reiterate that he indeed was NOT getting computer time, and if he went in to a tangent again, that I again would INDEED place him in another bear hug.

Later on in the day, he said (being I was giving him a Vyvanse break for the day, but it does NOT control his mood and volatile side, just the problems with the ADHD like attention and focus) that being he did not have his medicine, that he lost his "control".

This has been an on-going battle/issue with us. Bryce has brought himself to believe that ONLY with his medication, can he "be a good boy", that it's NOT in HIS control to do so, but his medicines' control.

This scares me. A lot. And all of the time. I sound like a broken record at this point, when I tell him that it is NOT the medicines that make him have self control, but BRYCE (as in HIMSELF) that has the self control capability.

But his mind has been self-taught to BELIEVE that without the medicines, he is not in control of his own self, or is responsible for his negative actions, behaviors, thoughts or words.

So, now I'm at a crossroad. Which way do I turn? I highly suspect at this point, he is ADDICTED to at least one of his medicines. He can't seem to "live" without them now. And at nine years old, that is NOT a good sign to me.

We are to see his Psychiatrist on Friday. And I indeed plan on broaching this problem. I'm very tempted to start taking away the medications. At least temporarily. Even if it means committing him to do so, as to keep all involved safe, so that they can see what exact drug of the three is the root of the problem.

While the medications DO work and ARE helping (to a great extent), Bryce HAS TO realize that it is NOT the drugs' job to make him "be a good kid", but himself.

Sometimes, I wonder why him... And this is certainly one of those time.

What Do YOU See In Him??

When you see my son, what do you see? Do you see the happiness he can have most of the time? Do you see that he can be sly at any given moment? Do you see how much he loves his family?

Can you see that my son is Bipolar (classed as Mood Disorder), with OCD, ADHD, Asperger's Tendencies,Manic Depression, an Anxiety Disorder, Tardive Dyskenesia and a Behavior Disorder?

When our children with these 'problems' have an "off" day of lashing out and being 'abnormal', it is OUR normal. We have gotten used to the stares and whispers out in the public eye. Especially when an episode from the Mania he experiences just suddenly pops up during a shopping trip or other outing.

Sure all is fine and good with the world around us....Until *it* happens. Bryce's eyes glaze over in a "haze" and get a more sharp tone. His voice is quiet. His movement almost at a stand still. Then it happens. OUTBURST!

Next thing I know, I am having to take Bryce off to the side to talk him down, maybe even bear hug him from behind. Otherwise he is going to try and knock things over, run off, or hit someone (mainly me or his sisters).

And this is where the world's judges come in. They gawk and stare at the "evil" little boy and the parents that obviously can't "control" their kid. They see that as one of us is dealing with Bryce, the other is trying to maintain calmness with Hayley and Skyler, as to not have them feel upset or embarrassed.

Once everything is said and done, the calm comes as the storm passes. And everything is as it once was before the episode hit. And yes, these can occur at ANY given moment at ANY time of day, in ANY place (even in the home).

What you see as an "outsider" looking in though is NOT what I see. I don't see the "evil" little child that is unruly and needs his "ass whipped more often".

What I personally see as Bryce's mother, and Scott sees in his son as the boy's father is the potential that our son has to become a normal and productive member of society.

Bryce is in mainstream classes at school. And in ADVANCED Math and Reading classes.

He has friends and a 'social life'.

Bryce loves to play games on the computer.

My boy is a major Hot Wheels and Zhu Pets junkie.

He has a wonderful talent for knowing about Astronomy and Science in general.

But Bryce also requires monthly Psychiatric sessions because to help curb MOST of the symptoms of all of his disabilities, he needs medication. And to be sure that the medicines are working properly, there are no adverse affects, and that he is overall doing well, he must see a "shrink".

Okay, yes I said that I "drug" my kid. But, there are SO MANY misconceptions about the medications that are given to Psychiatric patients. Especially those given to children.

My son is not a "zombie'. He is not "foaming at the mouth" or listless. He is functioning at a better rate for his age THANKS TO those drugs. And it helps curb the ideals for him to go and get a hammer or knife and hold it up at me, all the while saying he is GOING TO KILL ME.

Yep, that's actually happened a few times over the years. Why do you think I have to keep the tool room locked? Mainly with the hammer. I don't remember him ever trying it with a knife. But he has raised scissors, ready to strike at me.

What this is all boiling down to is that for parents such as myself, we are tired of "professionals" telling us what we do or do not know. No one knows our children better than us. And when we cry out for help, we EXPECT someone to be there, listen and do RIGHT by our kids. Not pass us off and think that they 'know' our children. When that happens, dangerous or even fatal errors can occur.

Same goes for society as well. When you see a parent dealing with an "evil little brat", don't assume that the kid is just a 'bad seed' and the parent is just not "parenting right". Look at the scene a little closer. Try for a second to put yourself in their shoes. Because their child might be Special too.

Hidden Disabilities get the most "heat" in this nation (USA) and passed off by the general public more than it should be. It's time to stand back and get to know the person before judging them. They are human too and all they ask for, like anyone else is some compassion, understanding, and caring.

Walking Away = Failure?

Again, I am doing a Copy/Paste from my main blog, "The Happy Homemaker Diary" as to incorporate things that I have talked about in regards to my son and parenting him. Plus I think that the post says ever so well what I don't think I could say in secondary form with the right.."gusto" the first time around.

Even now, I have bouts of uncertainty and doubt in raising my children. I think all of us as parents tend to do it from time to time. But add in all the extra "needs" of a disabled child, and the doubts and uncertainty really pile up.

Copy of Why have I not walked away yet?..

How many times have you just wanted to give up? Be it getting ahead financially, the house getting back in order, getting the kids to listen or any other number of possible problems that we all face.

I've personally wanted to throw in the towel so many times that I have officially lost count. Okay, it's because I have no more fingers or toes to count on, being that all twenty of them are used up.

For those of us with children that have disabilities, the number can skyrocket. Especially if they have mental disabilities that make their personalities and moods change like the weather.

There have been days that I just want to leave my screaming, hateful, physically violent child and walk away. I get so tired. It is often times just too draining to deal with anymore. Both physically and mentally.

Those that have Neuro-Typical children (i.e. normal kids with normal heads) always tell us moms of kids like my son "If it were me, I wouldn't be able to handle it. How can you deal with this everyday?".

The answer is simple. We do it because we love our child too much to walk away.

They need us. And in the end, we need them too. Our children deserve as much "normalcy" as we can provide. And we are their only true advocates in this world to ensure that they get the best life that is obtainable.

Once again this morning, Bryce had an "off morning". Once again, I had to deal with whining, crying, back-talking, trying to swing at me and be in a total anti-behavioral mode.

People have seen me in public with him when he "snaps" like this and just stare. Why? Most likely because I am stern, but I'm not "loud" with him as I try to curb his "wild side". I have had people who have gotten to know us ask how I do it. How I stay so calm and collected.

My secret? At times I walk away. Even as Bryce is being belligerent. If I don't and the tempers are both flaring, I might say or do something that I can't take back. So I walk away, take a breath, go back right away and deal with him and the situation.

Yes, there are power struggles. Daily. And with Bryce, thanks to his problems, they are magnified by one hundred it seems. His brain computes emotions, ideals, and comprehension much differently from a "normal" child his age (Bryce is 8).

So, if you are having a really bad, no good, horrible day with your child, then just walk away for a bit. Be it to lock yourself in the bathroom or bedroom. Go outside and get a breath of fresh air on the porch.

Just be sure that the child in question (and any other children in the home) is safe.

Once you are calm, then deal with the situation and the child at hand. It's better than the alternative, which has a more negative outcome.