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Wednesday, December 29, 2010

Starting Point.. His life. My life. *OUR* life.

My son. Where to start? First of all, he is smooshed between two sisters. There are times I can see in his face that being stuck in the middle of two girls, one with raging hormones is just a tad too... nuts.

When he was four years old, I knew something was really off. I'd seen some odd behaviors before then. Actually when he was a newborn. For the first three months of his life, he only would sleep in his car seat. He hated being held unless it was to be fed or changed. Everything HAD TO BE on his terms.

But at the age of four, things were really very peculiar. He would "order" things. Anything he could get a hold of. Books, CD's, toys. You name it, he ordered it in odd ways. Everything had to line up perfectly, be color coordinated or "numbered right". Sometimes all of the above.

Then, I came to note that he rarely if ever made eye contact. When he did, it was for only a few seconds at a time. Even these days, to get him to really look you in the eyes as you speak to him can be a chore.

His hyperness was another "abnormal" thing I noted. As was his violent tendencies. I'm talking "watch your back" violent moments.

Of course, I kept on FEELING something was quite wrong with my child. Compared to his big sister, he was just completely off the hook. I honestly at times feared for my life. And for a year, I pushed to have him tested for ADHD, being his activity primarily fit that specification.

After at least three repeated attempts, his Primary Care doctor REFUSED to let him be tested. So I forced them to give me a referral to a specialized group of Psychologists, Psychiatrists and Therapists that specialized in Mental Disorders and Illnesses.

Finally, after the testing was all said and done and the Psychiatrist and Psychologist really got to see my son in action...quirks and all, there was an official diagnosis. Actually, more than one.

ADHD (Attention Deficit Hyperactivity Disorder), OCD (Obsessive Compulsive Disorder), Sensory Disorder, Anxiety Disorder, Manic Depression, and the real shocker, Bipolar Disorder (which for now is labeled as Mood Disorder due to his age of only nine years old).

As of now, he is on Vyvanse and Intuniv for the ADHD, and on Seroquel for everything else, including as a sleep aide.

Believe me, as his mother, and a mother to two other children, I can and do have my days. Some days, he and I are seemingly at one another's throats. Other days, it's as if he is having a "moment" of clarity. Those are the days I cherish, since they are seemingly far and few between.

After reading this, I hope you will join me on my journey of documentation of his life as a child with mental disabilities (being that they DO impact his social, behavior, maturity and daily living skills/abilities) and maybe gain some knowledge of what life is like for kids like him and the parents like myself that care for and love them.

Until next time...


One Cluttered Brain said...

oh Wow. i think my 2nd daughter might have a bit of ADHD. She's 8. She has a VERY HARD time focusing on her school work and anything practically that I tell her to do.
YAY! I'm YOUR FIRST follower!!!!
(Well on here anyway.)
Love ya Missy. Looking forward to MORE posts....I'll tweet this out for MORE peeps to get a hold of this....

pr0udmom0f3 said...

YAY!! You win...a clap? No not THE clap. "*A*" clap.

Thanks for the tweet up. (=

What I said on this post was just the tip of the iceberg. There's more I had noted when he was younger, but I didn't want to bore people lol..

As time goes on, I'll delve more in to each area of disorders and of course journal about life in general with him and for him.

Vic said...

i'm a firm believer in GOD only gives you what you can second is completely wild and crazy total opposite of # 1. i got tied for a reason,....he knew i could only handle this! my sister on the other hand is only 25 with 4 boys, her eldest is on med. for being adhd and i've experienced it all. i look at her as the most wonderful, most amazing MOTHER on the planet earth. To deal with this and to be on top of it all is deserving of being called a FANTASTIC mom and you do to. I give you my support and encouragment and i just want you to know that you are a very good mother (none of us are perfect) we do all have our days, but you are on top! a super dee duper hero! lots of love mama:) keep sharing...i love this blog!

Anonymous said...

Stopping by via the Friday Hops to say follow and to say hello. Have a great New Years!

Ross said...

I'm glad I found your blog! I understand special needs. I myself was diagnosed six years ago with CRPS a rare neurological disease and don't have use of my left limbs. I know how stressful family life can be! So I understand when you say His Life, My Life, Our Life. Keep the faith and please stay in touch!

dosweatthesmallstuff said...

Hi, I found you at the Bloggy Moms. I really appreciate your blog. Thanks for sharing your experience with us. I am a mom of a "regular" 6 year old daughter, but a few years back I was diagnosed as clinically depressed and OCD. I've been taking meds ever since, one of which is Seroquel to help me sleep.

I understand how stressful it can get being a mother to a special-needs child, in addition to two other children. But from what I've read so far, you're doing really great! I'm glad that your son seems to make improvements!

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